Yes, they actually did.My mother was dreadfully delusion driven in her FrontoTemporal/Vascular Dementia.It was beyond awful not only for us, but for her.Imagine feeling and believing all of that as truth – her quality of life was very poor.I finally got Mom to Neuro.He prescribed Risperdal for her and to my utter amazement, within 24 – 48 hours, ALL delusions were quelled.It was so dramatic, I thought it was artifact and that it would soon revert back to the usual.Not so.Risperdal gave my mother a much higher quality of life and she was fortunate in that during the 2 1/2 years she had the medication, she had no side effects.About two years later, my step-dad’s Alzheimer’s Disease had progressed.He was having delusions off and on.This was disturbing to him and it also was causing an issue in keeping aides in the home.Step-dad had also complained bitterly about abdominal pain for over two years.He had many GI visits to several different GI specialists.He was scoped up, down and up and down again and again.All studies done showed absolutely nothing.He was on multiple meds for his gut.I finally was able to get him to Neuro and when describing Step-dad’s medical and dementia issues, the Neurologist after exam stated he felt the abdominal pain may well be a delusion!What???Huh????Ongoing pain a delusion?Well, the Neurologist prescribed Seroquel for the behavioral delusions and guess what?Within one day, step-dad’s complaints regarding abdominal pain completely disappeared and never returned!
Could have knocked me over with a feather.(I’m an RN – so I was initally a bit skeptical.I’m now a believer.)All GI meds were able to be tapered and discontinued and the pain has never returned.All behavioral issues based on other delusions also resolved.He has been on Seroquel for about three years and he too has been blessed not to have any side effects.Recently, the MD thought to try and decrease the Seroquel from a low dose three times a day to twice a day.Within one day, he was back to his delusional thinking, so he was returned to his usual regimen with good outcome.While my mother had Risperdal once a day and it was effective, my step-dad was a bit different.Initially once a day was not effective in maintaining my step-dad’s well-being.Neuro tried prescribing twice a day – there were still issues.Then Neuro lowered each single dose and prescribed Seroquel three times a day and that has been the very effective gold standard ever since.This is only one person’s story.Each and every patient will have a different outcome for effectiveness and tolerance.Best wishes,Johanna C.Hello, all.I was referred to this site by a friend’s mother, who cares for her mother (who has Alzheimer’s) and I’m very glad to find you all!I just wanted to introduce myself, and perhaps get some input if possible.Hopefully I can return the favor with some others here who need assistance and/or a sympathetic ear.I am 47 years old (female), and I care full-time in my home for my grandmother (who raised me), an 87-year-old lady with Alzheimer’s/Dementia/Psychosis.
I am a criminologist who writes (about criminology topics) by profession, but gave up my career temporarily in order to care for her so she would not have to go into a nursing home.The doctors suggested well over a year ago that I put her in a nursing home, because it was going to be far more difficult than I could imagine to care for someone in her condition.However, she didn’t put me into an orphanage, so I feel I owe this to her, plus some.I still don’t want to place her in a nursing home, unless it is absolutely necessary for her well-being.When I first took her in about six months ago (she used to live with my aunt for about a year, but couldn’t get along with her very well), she was just very frail and had Alzheimer’s/Dementia.I made her an “apartment” on the main floor of my house, because she was upset about losing her independence (though she had lived with my sister for 40 years, and before that with my grandfather, so she has never lived alone).I take care of all her needs (cooking, cleaning, bathing, exercise, medications, etc) and also sleep on the couch so I am in the same room with her at all times.i also ensured she has a nice wheelchair so I can take her for walks every day, to get her out of the house and get some fresh air.A couple of weeks ago, she was taken to the Emergency Room on advice of her doctor, because she began hallucinating that people were here.This followed an all-night situation wherein she believed children were screaming “I burn, I burn, I’m hungry, I’m hungry, whaaa, whaaa” and that her son (deceased for 20 years) had come back from the grave.
She sees them, she hears them, and she talks to them.She even tries to attack them.She tried to chase these nonexistent people everywhere.She was even trying to get into walls to get at them, at one point thought her son was “hiding” under a large doily on her nightstand (and tore it apart trying to get to him).She tore my house to pieces, trying to find these people who she just knew were here torturing her.When I say she is seeing her son, she is not seeing her son as he would look alive.She is seeing him as he would look if he literally crawled out of his grave.I didn’t realize that, until the psychiatrist at the hospital was able to figure it out.At the hospital, she was attacking everyone (especially me), being extremely verbally abusive/aggressive toward real people as well as the hallucinations (which followed her there).She was even threatening to kill people, and one time even tried to physically attack the ER doctor.They kept her at the hospital for three days in the ICU stepdown unit (her potassium was also dangerously low, despite administration of a daily supplement – which has happened before – but they said that could not possibly cause this symptom) and I stayed with her around the clock at the hospital so they wouldn’t have to put her in restraints, and also so she wouldn’t be afraid (she is deathly afraid of hospitals).They found nothing wrong with her, other than the potassium and of course her Alzheimer’s/Dementia, so she was examined by a psychiatrist who gave her an injection of Geodon, after which she slept for days, only waking to eat or use the bedpan.
Apparently the hallucinations have been going on for quite some time, and what we thought was just her eyes and ears playing tricks on her (she is almost blind and nearly deaf) were actually psychotic hallucinations.They sent her home with Haldol 1 mg to be given every eight hours as needed.Haldol, however, has some severe side effects, and can even prove fatal in dementia patients, so I have given it to her only when she is clearly agitated, just as it is prescribed.She seemed to be doing better, with only one incident similar to the original (but not as long-lived) until last night.Then, her behavior became worse than ever before.She was extremely verbally aggressive/abusive toward me.At one point she looked at me in a way which caused me to instinctively take a step back away from her in fear, though normally I do not fear her at all.She absolutely refused to take the Haldol (I call it her “nerve pill”, so as not to upset her), and I only got her to take it by lying to her about what it was (which I abhor doing, but I saw no other alternative).She also refused to lie down to sleep.I finally got her into bed at about 3 am, but by 7 am, she was up and believing there were many people in the room.Most of them, she believed, were men passed out drunk, while others were children.She took her full cup of water from her nightstand and poured it on her bed, thinking there was a drunk man lying there, and when I turned my back for minute to clean up another mess, she poured an entire can of Pepsi on my brand-new expensive sofa (which she picked out, and I bought it for her “apartment”) for the same reason.
She then was walking as if she were walking over the people who aren’t actually there.When I tried to make her see that it was just her “eyes and ears playing tricks”, by getting down onto the floor to prove no one was there, she only became more agitated.Honestly, I was about to lose MY mind.I was also extremely worried that she would fall.Her back is bent over similar to a question mark, so it wouldn’t take much to throw her off balance in that situation.I luckily have an aunt (her daughter, with whom she previously lived) who is willing to help when needed, and she came over right away.When she saw the shape Granny is in this time, she immediately said, “I know you want to keep her here, but you need to realize that it won’t be long until you’ll have no choice but to put her in a nursing home”.My aunt was able to calm her down (she seems to believe her daughter is her mother) and she slept for a few hours, and seemed much calmer when she woke up, but was still hallucinating.She thought she saw a rat in the floor, and was talking to someone who wasn’t here yet again.However, she was far less agitated, so that’s manageable on my end since things of that nature do not frighten me in and of themselves.Sadly, I fear my aunt is right, and that I won’t be able to keep her here until she passes, though putting her in a nursing home is the very last thing I want to do.I’m going to talk to her family doctor on her next appointment (on the 25th) and see if perhaps she needs a higher dose of Haldol.
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